A special conversation…

I had the privilege of sitting down the other day with four of our fabulous fifth graders who are on a passionate mission right now and they are seeking our LME help.  Madi, Macee, RaeAnn, and Karson are preparing to walk in the upcoming Cystic Fibrosis Foundation Walk-For-A-Cure on May 20th as part of their ongoing efforts to raise awareness about CF.  You see, Madi and Macee are twins who live with CF; they want their unique story shared:

  • Madi:  You know, living with CF is challenging.  It makes us cough a lot and feel bad and really tired.  We have to get up at 5:15 every morning to get our treatments done so we get to school on time.
  • Macee:  We have to be careful about germs.  A simple cold can put us in the hospital because CF affects our lungs by causing frequent lung infections that damage our lung tissue.  This makes it super difficult and sometimes impossible to breathe.

Karson and RaeAnn then shared more important facts about CF (who are also committed to helping their friends):

  • RaeAnn:  CF is a disease that is NOT contagious, but it affects the lungs and digestive system for our friends.  They have to do breathing treatments multiple times each day and take many pills called enzymes to ensure the food they eat is digested well.  Also, they can get dehydrated 20 times faster so they have to drink lots of water all the time.
  • Karson:  Because of the all the treatments and medicines they do daily, they have to see their doctors often.  We want others to know about this disease and we have to help find a cure!

There were several more facts shared and the conversation turned to this team’s proposal for our help:  They want to do a special day here at Miller to support the work currently being done with Cystic Fibrosis for a cure.  All four girls are walking in the CFF Walk in two weeks; they need LME’s help to meet their goal.  They have designed a special Hat Day for those wishing to participate.  Next Wednesday, May 16th, anyone wishing to participate may contribute $1.00 to wear a hat of choice throughout the day on campus.  The money collected from each homeroom goes directly to the CFF for a cure.  We will announce our Miller total at the end of the day.

I’m so proud of these young ladies for proactively working on a global mission at the local level; they are making a world of difference in their special way by sharing the facts with everyone and working to find a solution together.  HATs-Off (or on, in this case) to you, Miller learners, for setting the standards so high!  I look forward to seeing lots of hats next week on Wednesday!  🙂

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